I am thankful for all our family and friends and for Renee's friends that are helping to carry our pain.
I am thankful that Teresa, Bernie, Mary, & Gloria made the trip to New York to visit and comfort us in our sorrow.
I'm thankful for the many insightful blogs, poems, songs, and plays Renee wrote. The pictures and videos she took. Some day soon, I hope, we will get them published.
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I just found your family's blogs and stories today, February 29th. I want to say I am so sorry for your loss of Renee. I also want you to know that there exists a network of SCID families, families who understand your family's triumphs and losses. There will also be a SCID Conference held in July 2008. If you're interested in meeting other families please consider attending. http://scidconference2008.wordpress.com or find the SCID listserv at http://scid.net/scidmail.htm
ReplyDeleteRegards, Barb Ballard, SCID Mom
Thank you for the invitation. We will certainly consider going to the conference.
ReplyDeleteI hope we get the opportunity to meet there.
ReplyDeleteBarb Ballard, SCID Mom
scidemail at scid dot net
we are registered for this conference
ReplyDeleteRay, martha, Kara
please look for us