Wednesday, January 02, 2008

Golden is 7 months

His parents have known for 2 weeks that he has a very rare disease, not leukemia, that gets treated like leukemia. His mother, Jen, carries him in a front baby sling and sings to him to keep him happy while they wait for the chemo to start. they have to come into the day hospital 3 times a week. She is just past the shock stage and moving to the anger stage.

Scott and Catherine family come from eastern Europe. He is a software engineer. Their daughter Racheal has to come from Westchester 3 times a week for treatment. She shared a hospital room with Renee some time ago.

It seems 1/2 the people coming here for treatment are orthodox Jews where the women wear wigs, and the men wear black rim hats and curled sideburns.

Dr Steinherz is back from his visit to his new grandson in Israel. He said Renee is in remission, but he can't understand why she keeps needing more platelets. She is
getting 150 mg more Micafungin Sodium even though they were not able to find any fungus in her lungs. She still has to come in 3 times a week.

Last night Renee and I went to an independent theatre and saw a 1931 film by Charlie Chaplain. Dinner at Benito2 in Little Italy.

I am excited. My beloved is coming back to New York today!

1 comment:

  1. Anonymous10:04 PM

    I am just so blessed and moved on how your faith in God is so real, practical and relevant. When I read your blogs it brings tears to my eyes and I see the kind and gentle King leading and blessing even through the valleys of uncertainty.... Be encouraged He is good He is great ...and it will all work out for the best in the light of eternal matters ....

    For the things of this earth will grow strangley dim, in the light of His Glory and Grace ...

    We love you from afar ... Ron and Anne in Wpg. at